Week #4 - Monday, September 26, 2022
Eric J. Ruby, M.D. F.A.A.P. introduces week #4.
Advocacy and political issues are presented by...
Doug Frey- Greater Boston Chapter of United Spinal Association
Deborah Freed- New England Chapter of Paralyzed Veterans of America
Leda Anderson- Massachusetts Medical Society
Amy Jozan - Bill S. 768 An Act to Protect Medically Fragile Children
Kristen McCosh- Boston Disability Commission
Eric J. Ruby, M.D. F.A.A.P. gives his SCI awareness month conclusion.
Bonus Material: Dr. Yang (Ted) Teng - Post-Spinal Cord Injury Therapeutic Effects on Human Neural Stem Cells
*During each video use the "Pause" feature to read detailed slides*
Important Links Below
Disability Law Center Priority Survey
A COLLABORATION OF MASSACHUSETTS REHABILITATION FACILITIES, CONSUMER ORGANIZATIONS, LEGISLATORS, SCIENTISTS, RESEARCHERS, POLICY MAKERS, AND ADVOCATES WORKING TOWARD A COMMON GOAL TO INCREASE AWARENESS AND FUNDING FOR SPINAL CORD INJURY CURE
Our Vision is to promote awareness, funding, research, and rehabilitation in the quest for a cure of Spinal Cord Injury Paralysis.
Our Mission is to share information from our network community to promote improvement in the quality of life and activities of daily living of those with Spinal Cord Injury Paralysis.
Our goal to increase funding was achieved. Five researchers in Boston were awarded two and a half million dollars over two years commencing July 1, 2019.
The SCI Trust Fund was established in 2004 to provide funding
opportunities for SCI research in Massachusetts. If legislation
remains in place, we will continue to see significant funding.
Massachusetts Walks Again is pleased to announce some positive developments. Years of advocacy combined with testimonies in July, 2015 and September, 2015 have led to the passage of S.2019.
To date, over $4,000,000 has been allocated to this fund. Funds come from a surcharge to the reinstatement of every Massachusetts motor vehicle license.
We will reach out virtually each of the four Mondays of September. This way viewers can watch as little or as much as they want on their own schedule.
This is the tentative program:
Week #1) Monday, September 5th - Introduction to the format. Proclamation. Overview of Massachusetts Walks Again Website(massachusettswalksagain.com) and our Network. Sponsor, Senator Marc Pacheco. DPH Data in terms of funding, # cases last year, costs.